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Glaucoma awareness and access to healthcare: perceptions among glaucoma patients in Tanzania
  1. Jeremy A Gilmour-White1,
  2. Peter Shah2,3,4,
  3. Vinette Cross3,4,
  4. William Makupa5,
  5. Heiko Philippin5,6
  1. 1Walsall Manor Hospital, Birmingham, UK
  2. 2Department of Ophthalmology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
  3. 3NIHR Biomedical Research Centre, Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology, London, UK
  4. 4Centre for Health and Social Care Improvement, Faculty of Education Health and Wellbeing, University of Wolverhampton, Wolverhampton, UK
  5. 5Eye Department, Kilimanjaro Christian Medical Centre, Moshi, Tanzania
  6. 6International Centre for Eye Health, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, London, UK
  1. Correspondence to Dr Jeremy Andrew Gilmour-White, Walsall Manor Hospital, Moat Road, Walsall, West Midlands WS29PS, UK; j.gilmour-white{at}nhs.net

Abstract

Objective To investigate the barriers to access to eye health services for patients with glaucoma in Tanzania with the aim of identifying key areas for improvement and further research.

Design Qualitative investigation using face-to-face semi-structured interviews with patients recruited from the Kilimanjaro Christian Medical Centre (KCMC) outpatient eye clinic. This project is part of the international strategy of the Research into Glaucoma and Ethnicity (ReGAE) programme.

Methods Interviews were conducted with the help of a translator; all data were transcribed in Swahili and then translated into English. Manual coding and qualitative analysis was used to identify major themes and relevant concepts. Data were collected during May and June 2013.

Main outcome measures Qualitative data on glaucoma awareness and access to healthcare.

Results 12 patients (7 men, 5 women) of mean age 67.5 years (range 53–86 years) were interviewed. All participants had a previous diagnosis of glaucoma and no other eye conditions. The understanding of glaucoma was limited and the capacity for healthcare providers to improve glaucoma knowledge seemed underused. Participants had particular difficulty in understanding the aetiology and chronicity of the disease. Socioeconomic factors also posed significant barriers to service usage.

Conclusions Among many barriers to access to health services for patients with glaucoma, knowledge of the condition was identified as a key issue. Enhancing the understanding of glaucoma may improve access by triggering earlier presentation, informing those at risk and improving adherence to treatment. This is an area for further research with potential for improving service provision.

  • Access
  • Healthcare
  • Tanzania

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